I know I wrote an article about this for HubPages a while ago. I’m not sure if I posted the link to that article here or not, but I thought it would be an interesting topic for my YouTube channel, so I also made a video about it.
Category: Breast Cancer
YouTube Channel Welcome Video
This one is just a video introducing myself and this channel. I discuss why I started this channel and what kind of content you can expect me to post. I plan on posting things about my spiritual practices, devotional artwork and writings to Inanna, divination using Tarot, and probably stuff about learning the Sumerian language. So basically the same kinds of topics I blog about here! I’m sure there will end up being “off topic” content since I have a lot of different interests.
My Experience With the Paxman Cold Cap
I promised a review of the Paxman cold cap system, and here it is: My Experience Using the Paxman Cold Cap During Chemo.
A cold cap (also known as a “cool cap”) is a relatively new invention that allows cancer patients to keep some of their hair during chemo treatments. This revolutionary product works by freezing an individual’s hair follicles so they don’t receive the full effect of chemotherapy drugs. Scalp cooling has been proven to reduce hair loss for almost all solid tumor cancer treatments.
There are currently two types of scalp cooling systems. This includes:
- Machine: This cold capping system works by sending coolant through a special cap that is worn during chemotherapy treatments.
- Manual: These are similar to machine-based systems but require users to manually switch frozen caps throughout the treatment.
This article discusses my experience with the Paxman scalp cooling system. It examines the device itself, the process involved, potential side effects, and the cap’s overall effectiveness. I have also included some practical tips for using the device and links to charities that help cover the costs of scalp cooling.
I didn’t die and I ain’t complaining
I know, I never came back to post any updates on my treatments, or anything else that I’ve been doing in the last year. Every time I thought to write about my cancer journey, I just couldn’t bring myself to sit down and do it. I’m just not interested in reliving that experience — though I’ll probably have to relive it eventually anyway, thanks to my genetic mutation. One of these days, I do still want to write up a full review of the Paxman Cold Cap, because I feel like everyone who has to have chemo should know about it (I did still have a lot of shedding, but I had enough hair left that no one could tell that I had cancer. At least that’s what everyone said to my face). That review will probably go on one of the HubPages network sites, where people will actually be able to find it from their search engines.
I finished my AmeriCorps term and I’ve been employed at the same organization where I served for the past year. I also finished my CDA course, passed the test and observation, and received my credential.
Since my cancer diagnosis, I’ve been getting back into spirituality. I debated whether I should discuss this type of thing on my public blog. I’ve been drawn to the goddess Inanna since I was in my early teens. While in treatment, I recalled the myth of Inanna’s descent. This story became a source of inspiration to keep me going. I’ve gone through many different phases of spiritual seeking throughout my life, but Inanna has always been the deity I turned to for guidance. There is much more to it that this, but I’m going to keep it short for this post.
At the same time, I was discussing spirituality with a friend who was also in the midst of her own breast cancer journey. I met her over a decade ago at a Buddhist meditation class. She was also interested in paganism and started inviting me to pagan events with her. I had been thinking about getting involved with the larger pagan community for decades, but was a bit intimidated. What if non-pagans think I’m crazy? Or discriminate against me? What if pagans think I’m just a “fluffy bunny?” (I haven’t really seen that term used in years, but that seemed to be a valid concern when I first dipped my toes in the pagan world as a teen). What will my husband think? I wasn’t too concerned what other friends/family would think, however. Only Hans stood by me during my cancer battle, so no one else really gets a say in what I include in my life (not that they did before, but you know what I mean).
So anyway, meeting other pagans helped me feel more comfortable in practicing more publicly. There aren’t a whole lot of people out there who follow Sumerian deities like Inanna, but I’ve recently found there is a small community of Mesopotamian pagans out there. A few weeks ago I attended an online conference called IshtarFest, and it was amazing! I’m also going through the initiatory rituals in Rod and Ring: An Initiation into a Mesopotamian Mystery Tradition by Samuel David to deepen my practice and to become better acquainted with the deities.
I also recently found a book and YouTube series to learn to read the ancient Sumerian language, so I’m working on that right now too. I want to be able to read the original Sumerian myths someday (and be able to say “that’s not what the cuneiform says!” when ancient astronaut theorists make their crazy claims!)
Oh, and I’ve had pink hair since September. I cut my hair way shorter than its ever been (above shoulder length) before starting chemo because people said that the cold cap would probably work better with shorter hair, something about less weight being less strain on the follicles or something? idfk. Anyway, I hate it so short. But I like it pink, so it’s going to stay pink at least until it grows back out to its normal length. Some people might think I’m too old for crazy hair, but they’ve got it all wrong. Since there’s a good chance I won’t live long enough to have a proper “eccentric old lady” phase, I’m having my eccentric phase now.
Sorry for the title. I did not resist the millennial urge to post (not so) cryptic song lyrics…
Update
Pardon me for not updating this blog for a while. A lot has happened since my last update.
I was diagnosed with breast cancer at the beginning of January. It’s only stage 1a, but its triple negative. I already knew that I was BRCA1+, so I have already been having regular screenings, which is how it was found so early in the first place. It has about a 99%-100% survival rate with treatment at this stage apparently, so I just have to get through the treatments and I should be fine.
I had my lumpectomy in February and have had 2 of my 4 chemo treatments. Since it was triple negative, I have to have the chemo to prevent distance recurrence, since there isn’t much else they can do about triple negative breast cancer. When those are finished, I’ll need radiation as well to prevent local recurrence. I’ll likely write more about this whole experience on HubPage’s Patient’s Lounge website one of these day, but I haven’t much felt like talking or writing about it yet.
Aside from that, I’m still serving with AmeriCorps at Horizon. I’ve been my team’s LeaderCorps member since February. For our service project, we recently installed a community refrigerator at the Elyria Public Library South Branch in partnership with the Elyria Public Library. It is part of the Freedge project, and the first official Freedge in the state of Ohio.
Our mobile food pantries have also started back up this month. In cooperation with the Greater Cleveland Food Bank, we give out free fresh produce in the parking lot at three of our centers, each one Thursday a month.
I’m also working on my CDA (Child Development Associate) credential so that I can further my career in childcare/preschool once I’m done with AmeriCorps. Horizon sponsors employees, including AmeriCorps members, to take the courses, so I couldn’t pass up to opportunity!
I’m putting publishing any more children’s books on the back burner until I learn more about child development from my classes. The more I learn, the more I realize I need to learn more! I want to be sure anything new I put out there is actually developmentally appropriate.
Really, I’m just trying to keep my mind on anything other than my diagnosis. I fully intend to come out of this even stronger than before!